non-profit organisation
we are Vedle Tebe
We help people who depend on care, and their families. We know it from our own home, too.
temporary page For now this is only a calling card. We are preparing a full portal for carers; once it is ready, it will replace this page.
who we are
And in most cases that family is left to face it alone. We want to change that: through research, tools, education and persistent pressure on the system.
the first year self-funded, without grants
We are here for people who depend on care and for their families. For older people after a stroke, for people after serious injuries, for cancer patients at an advanced stage, for adults and children with disabilities, and for people with neurodegenerative diseases.
We work with families who care at home and with those who had to entrust their loved one to a residential facility. The caring role does not end there either. Most of our attention goes to the hardest cases: families who care for years for someone at an advanced stage of illness, most often for someone with a form of dementia or with Parkinson’s disease. The founders of Vedle Tebe have been caring for a loved one with dementia at home for sixteen years. And they are caring still.
the problem no one is solving
171,000
diagnosed cases of dementia; the real number is estimated to be twice as high
371,800
recipients of the care allowance in Czechia
60–75%
of them stay at home in the care of their family
These are estimates. We are looking for more precise figures together with expert institutions, and we do not want to claim more than we know.
In this system the caregiving family replaces the entire health and social care apparatus. With no right to a wage.
what we do
We collect data on what caregiving families need and develop tools and care methodologies.
We are building an online portal and a mobile app so that carers have help at hand.
We push for systemic change in favour of people who depend on care and their families.
We guide the family through a crisis step by step. Mobile teams are on the way.
We use technology to make help faster and more accessible.
We connect people who do not have to explain anything to each other.
We educate carers, professionals and the public, and raise awareness of care.
We test aids and care services. Facility assessments and quality certification are on the way.
where we are now
Our work today rests on research and expert collaboration.
and on talks with those who decide about the system
We carry out our own studies and analyses of where and why the care system in Czechia fails: at home, in hospitals and in residential facilities. We develop care methodologies grounded in the experience of caregiving families.
We publish our results and present them at professional congresses. We also work with other families in a similar situation. Their experience is our most valuable source of knowledge and the foundation of the community we want to keep building on.
We are developing a new medicine formulation for patients who cannot swallow.
and new methods of administering known molecules
When swallowing starts to fail, medicines stop working reliably too. With pharmacists we therefore initiated the development of a medicine formulation for patients with benign prostatic hyperplasia. The preparation has been made and is undergoing experimental testing.
In patients with severe dementia we are at the same time testing new methods of administering known molecules, under medical supervision. In 2025 we presented both pieces of work at palliative medicine congresses, in Olomouc and in Pilsen. On top of that we are building a tool that collects data from public administration, mainly from the Institute of Health Information and Statistics, and looks for what annual reports do not show. The first phase of collection is behind us.
Who we are already talking to
Academic and clinical collaboration. Our point of contact at the faculty is Vice-Dean MUDr. David Marx, Ph.D.
Data outputs on long-term care, which no one in Czechia has systematically tracked.
How doctors, nurses and direct-care workers are taught about dementia and long-term care. Together with other expert institutions.
Direct talks with Minister of Health Adam Vojtěch and with the Director-General of the Healthcare Section, MUDr. Zachar.
The care allowance and the money of caregiving families. This part of the household budget is barely talked about.
Discrimination against patients with severe dementia within the healthcare system.
A podcast series to bring long-term care into public debate.
We are also talking to the Office of the Public Defender of Rights, to doctors and researchers, to organisations abroad and to other families who come to us. We have been covered by Seznam Zprávy, ČT24, Reflex, Novinky.cz, Deník.cz and FitŽivot.cz.
The status on each item says how far the talks have got. One meeting does not make a partnership.
what we are building
Alongside research and expert collaboration, we are building tools and services to make caregiving families’ everyday lives easier.
None of this is presented as a finished service yet. But we have a clear plan and we are working through it.
Everything in one place: legal and financial navigation, care coordination and a link to other carers.
They travel to families’ homes, to specialist dementia care homes and to long-term care facilities.
Tools that save carers hours of searching.
For families and professionals caring for people with dementia.
We defend carers’ interests in the places where their future is decided.
what it took
April 2025
when we started
CZK 0
in external support
24/7
of home care alongside it all
Everything we have built or started so far came about without a single crown from outside. Out of conviction, out of our own savings and out of hours gathered at night and at weekends.
And all of it alongside demanding home care that takes no break, not on a Sunday and not at Christmas. And now we are looking for partners who will take it further with us.
contact
transparent account
2403550620/2010
The account is transparent. Everything that comes in and goes out is visible, including who supported us.
write to us
working version
Do you have a password from us?
Locked The working version is only for people we have arranged it with. Please enter the password again.
The portal we are building is not publicly accessible. We give access to partners so they can take a look, and to collaborators who help us develop and test it. This is a working version: we are still writing the texts and checking them against the law and official sources, and some features are not running yet.
Do you have a personal link from us? Just click it, no password needed. No access yet and you would like to look around? Write to us.
